My rare disease podcast
WebThe Rare Disorder Podcast hosted by Shivani Vyas. 21 episodes to date. Atypical Truth hosted by Erica Stearns, a disabled adult, and proud mother of two young children who … WebWelcome to 'My rare disease' podcast. This is a platform where I raise awareness of something that affects 1 in 15 people, rare disease. By chatting to patients, health professionals and advocates, we talk about all aspects of rare disease including relationships, mental health and much more.
My rare disease podcast
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WebWelcome to 'My rare disease' podcast. This is a platform where I raise awareness of something that affects 1 in 15 people, rare disease. By chatting to patients, health … WebPresident at CTNNB1 Syndrome Awareness Worldwide (CSAW) Report this post Report Report
WebWelcome to 'My rare disease' podcast. This is a platform where I raise awareness of something that affects 1 in 15 people, rare disease. By chatting to patients, health … WebApr 11, 2024 · In August 2024, I created my podcast ‘my rare disease’ with the aim of raising awareness of different rare conditions and sharing important messages. I want people to know that rare conditions can be so much more than a physical diagnosis, it can affect all aspects of a person’s life. This podcast has allowed me to have a voice and give a ...
WebMar 6, 2024 · The mission of our podcast is to support you, our listeners and to create community, as you confront the toughest challenges in life. All of us will experience health hardships. The real question is how we adapt. That is the focus of It Happened To Me, which wants to help you overcome limitations and live a full and satisfying life. WebApr 23, 2024 · My Rare Disease by Katy Baker On this podcast, the host, who was diagnosed with a rare disease as an infant, chats with other rare disease patients, health professionals, and advocates to talk about all aspects of rare disease. They discuss relationships, mental health, and much more.
WebWelcome to 'My rare disease' podcast. This is a platform where I raise awareness of something that affects 1 in 15 people, rare disease. By chatting to patients, health …
WebRare Disease Podcast Effie Parks February 17, 2024 Rare Disease, Special Needs Podcast. ONCE UPON A GENE - EPISODE 173 - Honoring a Husband’s Legacy by Finishing His Work on a Documentary About Rare Disease Acute Flaccid Myelitis and Her Own Grief Along the Way with Sarah Potter. jefferson city mo to amarilloWebWelcome to 'My rare disease' podcast. This is a platform where I raise awareness of something that affects 1 in 17 people, rare disease. By chatting to patient… jefferson city mo to breese ilWebIn our new monthly podcast, Rare on Air, our Communications Manager, Julien Poulain, meets with people who live with a rare disease, those who advocate for them, and experts on rare disease policy. The podcast explores the unique experiences, challenges and successes of people from our community, and investigates how we can build a better […] jefferson city mo things to doWebRare Disease Podcasts Two Disabled Dudes: Life Beyond Circumstances. Sean and Kyle are both affected by a rare disease called Friedreich’s... Two Rare Mama Bears. Two Rare … oxfordshire volunteering opportunitiesWebApr 12, 2024 · The series invites a global panel of patient group representatives, clinicians and policy makers in the rare bleeding disorders community to discuss how multiple stakeholders can work together to advocate for personalized care, with the goal of improving patient outcomes such as joint health. oxfordshire volunteersWebRare Disease Podcast. Starting listening to a few episodes of My Rare Disease Podcast where in each episode a person with a different rare disease is interviewed and talks about life. I thought it was a cool initiative of this young woman and that it … oxfordshire volunteeringWebAnunț publicat de Mariana Parks Mariana Parks President at CTNNB1 Syndrome Awareness Worldwide (CSAW) jefferson city mo to hazelwood mo